Our Vision

ALS (Amyotrophic Lateral Sclerosis) is incurable. There is no treatment which helps overcome the symptoms. And the disease still is not given enough importance by society. It´s a great unknown. ALS is incurable because it is invisible.

The Luzón Foundation was born to make this condition visible. To give voice to those affected. To raise awareness in society. To bring researchers together. To achieve the necessary public and private investment to finally find a cure. In Spain 900 new cases of ALS are diagnosed every year.

We cannot afford to waste any more time.

Our Mission

The Luzón Foundation seeks to be the centre which brings together the national ALS community. A community organised to give visibility to the disease and to improve the comprehensive care for its patients.

Boosting research is key to being able to find a treatment and a cure for ALS. New models need to be found to allow the lack of investment to cease being a problem. But even this is not enough. We will only be able to raise social awareness about the disease and offer patients the comprehensive healthcare that they deserve if we bring together all the efforts of patients, relatives, researchers, scientific and health institutions, government and the media.

Everyone together to find a cure. As a community.

Our Values

Our values: those that emanate from the life philosophy of the founder and the essential starting point of the project, a reflection of the organisational culture. These are:

  • Exemplariness in both efficiency and effectiveness

 

  • A practical vocation, generating useful projects in the short term

 

  • A global vision, keeping ourselves aware of the most outstanding practices in the world

 

  • Cooperative working between public, private, national and international institutions

 

  • A work ethic aimed at innovating processes, relationships and results

 

  • A spirit of continuous and constructive improvement

Objectives

At the core of our mission, the five main approaches are:

 

1. Give visibility to ALS as well as raising awareness about it in wider society and the medical profession

 

2. Reduce diagnosis times and improve their reliability

 

3. Improve clinical treatment

 

4. Raise the quality of healthcare in hospitals and above all in patients homes

 

5. Boost research.

Organisation

This is the main governing body of the Francisco Luzón Foundation. It meets periodically to decide the plan of action in accordance with the principles of the institution.

-Francisco Luzón ()
-José Ignacio Rivero ()
-María José Arregui ()
-Estibaliz Luzón Gómez ()
-Iratxe Luzon Gomez ()
-Francisco Luzón Gómez ()
-Rafael Bengoa ()
-Fernando Escribano ()
-Juan Manuel Hoyos ()
-Isabel Gometza ()
-Ana Isabel López-Casero Beltrán ()

Made up of eminent individuals from the worlds of science, medicine and ALS research.

-Francisco Luzón. ()
-Rafael Bengoa. ()
-Fernando Escribano. ()
-Carlos Barrios ()
-José Carlo ()
-Isidro Ferrer ()
-Juan Manuel Hoyos ()
-Carlos López Otin ()
-Andreu Más Colell ()
-Jesús Mora ()
-Marius Rubiralta ()
-Margarita Salas ()

Made up of around twenty doctors who carry out their work in different specialisms related to ALS. They are part of hospitals in different Autonomous Regions, with multidisciplinary units and specialised services associated with the disease:

– Hospital Universitario Virgen del Rocio

– Hospital Universitario Marqués de Valdecilla

– Hospital Universitario de Bellvitge

– Hospital de la Santa Creu i Sant Pau

– Hospital Universitario y Politécnico La Fe

– Hospital Clínico Universitario de Valencia

– Hospital Clínico Universitario de Santiago de Compostela

– Hospital Universitario La Paz – Hospital Carlos III

– Hospital Universitario 12 de Octubre

– Hospital Universitario Ramón y Cajal

– Complejo Hospitalario de Navarra

– Hospital de Basurto

– Instituto de Investigación Biodonostia

– Clínica del CINAC

Made up of nineteen executives and professionals from business, philanthropic and academic fields whose objective is to bring value to the Foundation so that it in turn can translate this into value for those affected by ALS as well as research.

Made up of thirteen executives and professionals from the business and university world, as well as those affected by ALS, with a view to improving the treatment of patients with new and leading initiatives in clinical and technological areas.

Francisco Luzón

Francisco Luzón has always been known for his passion for change. A trained economist, he was a key player in the transformation of Spanish and Latin American banking for 30 years, working in entities such as Banco Bilbao Vizcaya, Argentaria or Banco Santander. This passion also led him to mastermind educational projects and platforms, based on public private cooperation and the development of network working.

 

In October 2013, 10 months after retiring, he was diagnosed with ALS, an unknown and incurable disease. Luzón not only will not surrender, he is undertaking the biggest transformation challenge of his life: the creation of a Foundation which will help find a cure for this terrible disease, bringing together all the stakeholders who need to be involved in it.

Related News

today ELA 18, September Ana López-Casero, nueva directora de la Fundación Luzón
today ELA 05, August La disfagia en la ELA: el enemigo oculto
today ELA 05, August Fàrmacos contra la ELA-Informe Fundació Luzòn