Research into ALS, the key to improving its treatment and to finding a cure, is currently hampered by a lack of investment and those affected suffer from the lack of a comprehensive clinical treatment, reduced welfare and social support as well as a poor understanding of the condition on the part of society in general

today ELA 01, December NOTA DEL Dr.MORA SOBRE EL ENSAYO CON TIRASEMTIV EN PACIENTES CON ELA Read More
today ELA 05, August Fàrmacos contra la ELA-Informe Fundació Luzòn Read More
today ELA 20, November Reflexiones sobre el estudio publicado en JCI Insight acerca de la pimozida en la ELA Read More
Uncategorized 13, November Fundación Estudiantes embajadora de la Fundación Luzón Read More
today ELA 02, November Una alianza histórica de la Fundación con la Fundación Bancaria “La Caixa” Read More
Nuestros Embajadores
Rafa Nadal
Fundación Estudiantes del Club Movistar Estudiantes

A Social Vision A platform to address the particular needs of ALS patients, carers and relatives from a social point of view

Fomentar la investigación en ELA es prioritario. Fomentar la investigación en ELA es prioritario. Coordinar esfuerzos a nivel estatal e internacional, generar masa crítica investigadora y fomentar la colaboración público-privada son aspectos clave para encontrar, por fin una cura
today ELA 01, December NOTA DEL Dr.MORA SOBRE EL ENSAYO CON TIRASEMTIV EN PACIENTES CON ELA
today ELA 05, August Fàrmacos contra la ELA-Informe Fundació Luzòn
today ELA 20, November Reflexiones sobre el estudio publicado en JCI Insight acerca de la pimozida en la ELA
ALS Testimonies
We, the patients and our families should be at the centre of the ALS community. See all the testimonies
The Foundation We are bringing together all the efforts in the fight against ALS Initiatives to raise awareness in society, to improve the diagnoses and treatment, developing research
Collaboration We want to build an ALS Community so that all those involved in the fight against the condition can work together
"What I miss most is being able to kiss my loved ones" "With ALS you never know because its origin, evolution and pace of development is different in each case and can never be predicted" "We need a critical mass of experts and more research to be able to speed up diagnoses" "ALS has turned me into a rebel, I want to defeat this disease" "The hardest thing about this disease is in your soul"